Lupus erythematosus is a rare autoimmune condition that causes rashes, scars and may evolve into a systemic disease that affects internal organs. Lupus erythematosus is not a curable disease. If you are affected by lupus erythematosus, it may help to get in touch with other people just like you, so you can join a support group. There may be lupus erythematosus support groups in your area, or you may join such as group through an online community.
Lupus Erythematosus Support Websites
The websites that can offer you support include:
- http://www.lupus.org - This is the Lupus Foundation of America, and it offers information about the disease, tips, new researches, programs and support services; it also features a Facebook page where you can meet other lupus patients and discuss the disease, read other stories or share your own story.
- http://www.lupusny.org/ - This is the same support group as above, but for patients in the New York area.
- http://www.experienceproject.com/groups/Have-Lupus-Erythematosus-Disseminatus/98581 - This is a support group where you can find information about the disease, stories written by patients, forums and chat with others.
- http://forum.wehavelupus.com/forum.php - This is a forum where you can ask questions, read stories and see other common questions answered.
- http://www.medindia.net/healthnetwork/support-groups/systemic-lupus-erythematosus/members-1.htm - This is a support group that includes discussions, FAQ, resources, as well as activities; you may also ask an expert if you have a specific question.
Joining any of these support groups is free, and you can create a user name in order to be able to ask questions or chat with other users.
Lupus Erythematosus in Your Area
In addition to the websites that you can join, you may also attend a support group in your area. Some people prefer to go to meetings instead of just joining an online lupus erythematosus community.
You should talk to your doctor and find out if there are any support groups in your area. You may also do an online research for lupus erythematosus support groups in your area.
However, given that lupus erythematosus is a rare condition, there may not be support groups in all areas, so you may also look into a few autoimmune disease support groups.
The Importance of Lupus Erythematosus Support Groups
Lupus erythematosus is an unusual disease that will be difficult to deal with, as it has no known cure; talking to others and reading about the experience of other lupus erythematosus patients may help you accept the disease and deal with it better. Knowing that you are not alone may help you boost your morale. A support group can be like a supporting family, if you don’t have anyone else to share your problems with.
By being a part of a support group, you may also become more aware of the potential risks and recognize the first signs of the systemic disease, should this ever occur. These support groups are also up to date with new researches conducted on lupus erythematosus, so you will find out if a cure has been found.
You may also talk about your story and possibly help others, which can give you a sense of accomplishment.